Huntington's Disease Society of America
Northeast Ohio Chapter

SUPPORT GROUP MEETINGS
We invite all Huntington’s Disease patients, their families, caregivers and individuals who are at risk to attend our monthly Support Group meetings. Monthly meetings are held in Cleveland and Akron and are facilitated by the Chapter’s Social Worker Kristin Kitzmiller. Kristin is a Licensed Independent Social Worker.

You can contact Kristin via email at kitzmiller27kr@yahoo.com or leave a message at the Chapter Office at 330-998-6600 and Kristin will return your call.

Beginning in January of 2010, the Akron Support Group Meetings will be held on the first Tuesday of each month.

For the dates and locations of 2010 meetings please see Chapter News.

CURRENT NEWSLETTER [pdf]

 

The Huntington’s Disease Society of America invites you to attend our second
Caregiver’s Corner webinar on Monday, January 25 at 2:00 p.m. EDT.

Caregiver’s Corner is designed to provide information, resources and support for caregivers so they are better able to face the daily challenges of living with HD.

Our webinar will feature Vicki Wheelock, M.D., Director of our HDSA Center of Excellence at the University of California, Davis Medical Center. She will focus on “How to Talk to Your Loved One’s Doctor about HD.” Dr. Wheelock will pick up on several threads introduced in our inaugural webinar, Coping Strategies for Caregivers, which was presented by Marsha Miller, Ph.D.

The webinar will run one hour with time at the end for questions. Attendees will receive an email after the webinar concludes directing them to an online survey to evaluate and rate the webinar and presenter. 

If you cannot join us on Monday, you can still view this presentation at your leisure by visiting the HDSA web site (www.hdsa.org) approximately 24-48 hours after the live webcast. A link on the HDSA home page will take you to the webinar. Thereafter, older webinars will be archived in the Living with HD section.

To register to attend the webinar please follow the link below and fill in all fields.

After registering you will receive a confirmation email containing information about joining the Webinar.

Participating in the Webinar is very easy. All you will have to do is go to the link you receive after you register. If this is your first Webinar we recommend that you log on five minutes before the start of the Webinar as it may take a few minutes for the process to complete.

This pilot series is made possible by an educational grant from Lundbeck.

Title: "2nd HDSA Caregiver's Corner"
Date:  Monday, January 25, 2010
Time:  2:00 PM - 3:00 PM EST

Register now by clicking the link below:
https://www2.gotomeeting.com/register/353230970

After registering you will receive a confirmation email containing information about joining the Webinar.

System Requirements:

PC-based attendees
Required: Windows(R) 2000, XP Home, XP Pro, 2003 Server, Vista

Macintosh(R)-based attendees
Required: Mac OS(R) X 10.4 (Tiger(R)) or newer

 

2010 CALENDAR OF EVENTS

 

 

February 21
1:00 – 5:00 p.m. 

Family Fun Bowling Party
Meszar’s Lanes [MAP]
4231 Fulton Road
Cleveland, OH 44114

Download the registration form: [PDF] or [Word Doc]

May 1  

Kentucky Derby Party

May 15

Open Forum & Annual Meeting
Embassy Suites Cleveland – Rockside [MAP]
5800 Rockside Woods Blvd.
Independence, OH 44131

June 12

Golf Outing
Hickory Nut Golf Course [MAP]
23601 Royalton Road (Route 82)
Columbia Station, OH 44028

June 25-27

HDSA National Convention –
Raleigh, NC

July 24 Team Hope Walking for HD
Dodge Intermediate School [MAP]
10225 Ravenna Road
Twinsburg, OH  44087
   

For further information, or to volunteer or sponsor any of the above, contact the Chapter Office at 330-998-6600. 

HDSA MARKETPLACE
Turn your online purchase into a donation for the Huntington's Disease Society of America. Shop through the HDSA Affiliates and HDSA will receive a percentage from all your purchases made. Visit www.HDSA.org and click on Marketplace.

The National Research Roster for HD Patients and Families is a nationwide registry and information resource dedicated to assisting scientific research on HD. The Roster identifies HD patients and families who are interested in participating in research projects to help scientists learn more about HD. The Roster has involved nearly 3,000 families in HD research.

The Indiana University DNA Bank was established as the world’s first DNA bank in 1984. The DNA bank was created so that individuals and families could store DNA samples that may be needed for future genetic testing.

For more information about the Roster or the DNA bank, please visit http://hdroster.iu.edu or contact the coordinator by calling 317-274-5744 or email pswolf@iupui.edu

YOU CAN HELP! Both funds and volunteers are needed to help the Huntington's Disease Society of America grow. To make a donation, to offer your time or for more information, please contact The HDSA NE Ohio Chapter at 330-998-6600 or your local chapter.
TOLL-FREE NATIONAL HDSA INFORMATION LINE 1-800-345-HDSA — on the Web at www.hdsa.org

Barbara Kaiser – Development Director
HDSA Northeast Ohio Chapter
10176 Luman Lane
Twinsburg, OH 44087
bkaiser@HDSA.org
Phone: 330-998-6600
Fax: 330-998-6677

Presented by Lakewood Public Library