Northeast Ohio Chapter
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Huntington's Disease Society of America Northeast Ohio Chapter |
CLEVELAND ** The September Support Group Meeting for the Cleveland SG Independence Civic Center-
Craft Room 2nd Mondays 6:00pm-8:00pm
AKRON Ellet Community Center 1st Tuesdays 6:30-7:45pm
YOUNGSTOWN Liberty Public Library June 10 and September 23, 2010
Research UpdatesWe have received news that positive results of the European study of the developmental HD therapeutic ACR16 were released on 2/4/10. For details, visit the website at http://www.hdsa.org/research/news/acr16.html.Also, the HART clinical trial to study ACR16 is enrolling in the United States, so for families excited by this news we encourage you to visit HDTrials.org or our interactive Clinical Trial map at http://www.hdsa.org/research/clinical-trials/find-your-closest-clinical-trial.html to learn about how you can get involved in the HART study. HDSA National ConventionThe 25th Annual HDSA National Convention will be held at the Hilton North Raleigh in Raleigh, NC from June 25 to June 27, 2010. For an application or more information, contact the local office at 330-998-6600 or visit our webite at www.hdsa.org/national-convention/convention.html HDSA National Convention National Youth Alliance ScholarshipHDSA is pleased to announce it is now accepting applications for HDSA's 2010--7th Annual National Youth Alliance (NYA) National Convention Scholarship. All persons ages 9-29 are encouraged to applly for this scholarship. For more information contact the NYA at nya@hdsa.org or Mynelly Perez at mperez@hdsa.org Clinical Trial Reports New 12 month data were reported on the continuation study of the Miraxion EPA trial. Though the earlier 6-month placebo controlled trial showed no benefit, Amarin reported possible trend towards benefit in their 12 month follow up. Trials for atomoxatine and citalopram will soon be completed, with results likely to be reported by midyear. The minocycline trial has completed recruitment, but reported results are not expected for at least 1 year. The phase II trial for Dimebon has begun and is actively recruiting. Phase III studies for both coenzyme Q-10 and creatine are slated to start later this year, but neither has begun recruiting. These are long trials with results in 4 to 5 years. Trials for ACR-16 are still in the talking phase in the U.S. However, EHDN has reported that Phase III clinical trials are slated to begin in Europe. Recycle cell phones, ink cartridges and more!
Give them to a Board Member or send them to Jeanie Chresos. Ms. Chresos will get them to the proper place and the Chapter will receive the recycling money. Help preserve the earth and help find a cure for HD, all at the same time. What could be better! Questions or to turn in your items: Neurogenetics ClinicWe have met with Dr. Robert Daroff, Interim Head of the Neurology Department at UH about the possibility of re-establishing the HD Clinic at University Hospitals. It is our hope that we will once again have a social worker to facilitate support group meetings, and to provide assistance to our HD patients, families, and caregivers. HD BraceletsBlue HD bracelets are available for $2.00 at the Support Group meetings.
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Download Brain Disease Blocker The Huntington's Disease Society of America (HDSA) wishes to thank the HD family members who volunteered to tell their story to ScienCentral so that the millions of viewers worldwide who see this story can be educated about Huntington's Disease and the hope that research offers for effective treatments and eventually a cure. Call 211 Are you aware that most counties provide an information line to residents and they need only call 211. This Info Line maintains a database of service providers which serve the counties. Trained information specialists are available 24 hours a day, 7 days a week - with specialized telecommunications equipment to serve individuals with hearing impairments. Because of support of local funding agencies - such as United Way and the Area Agency on Aging, this is a free service to area residents. Callers can receive free information about any number of services, including: * Drug Abuse & Alcoholism * Counseling Services * Senior Citizen Services * Government Services * Medical & Legal Services * Employment Information * Housing * Transportation * Emergency Food Assistance * Emergency Utility Assistance * Support Groups * Special Services for Seniors |
Barbara Kaiser – Development Director
HDSA Northeast Ohio Chapter
10176 Luman Lane
Twinsburg, OH 44087
bkaiser@HDSA.org
Phone: 330-998-6600
Fax: 330-998-6677
